Hello dear readers!
My apologies for not keeping this page updated as often as I would like to.
Today is a special day and I’m dedicating this post to ALL recovering/recovered patients and their families and whoever has/have been involved with someone diagnosed with NMDA Encephalitis.
Therefore the purpose of today’s post is to do all I can to spread AWARENESS of NMDA. Full name: ANTI-NMDA Receptor Encephalitis.
If this is your first time coming across this medical term, let me enlighten you.
NMDA is a type of autoimmune encephalitis. This occurs when our body’s own immune system attacks the brain.
Do keep in mind that seizures are one of the initial symptoms, it does not equal to the person being epileptic!
NMDA Receptor Antibody Encephalitis is a recently identified autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature. The disease can respond well to various therapies that dampen down the immune system and the removal of an underlying tumour if one is found, but improvement is often slow.
If you are keen to know a deeper insight of NMDA, this link should do good. It is where I got my facts from: CLICK HERE
For those of you new to my blog, I first showed symptoms (seizure in school) in Nov 2011 and was only given a proper diagnosis in Jan 2012. I was hospitalised for a month and with the help of my doctors, I was discharged on 8 Feb 2012. Being hospitalised for a month may have seemed long for me but as I compare mine to other patients’ experiences, I have to be thankful. Some have been in bed for months, some are much younger than me and for some faced the worst, death.
Since then, I was under a high dosage of Keppra. It was to manage my seizures. In Feb 2013, I was in my last 2 months of university studies and I unexpectedly had a relapse at home. I had multiple seizures more severe ones compared to the year before. So I was given IVIG treatment, a steroid for 5 days which was used to lower my immune system.
To cut everything short, after being discharged, the medication I was given was appalling. I never had so much drugs in my system before (and to factor in those terrible side effects!!). I however tried to keep a positive outlook of it (I know many will say it’s easier said than done). It definitely has helped me cope with life. Today, all steroids and other medicine except for one are OUT!! (:
Besides this intention of spreading awareness about WED222, my other highlight is to let people out there know that having NMDA leads to not only bad but good outcomes too.
Despite the horrific memories and whatever bad that came out with it, life is well and I’m contented, happy, happy where I am now. I know there’ll be others who disagree but what I feel that came out best was myself helping other families who have loved ones suffering with the same diagnosis as myself. Through facebook support groups and this dear blog, I’ve connected with some, some even here in Singapore! I want to help them because being alone battling this daily is obviously bad and I’ve always wanted to give back to the society. It gives me a good feel and I’m happy doing this. I want to help as many, I feel the need to.
Therefore, this leads me back to my main purpose of today’s post>> awareness awareness AWARENESS of NMDA!
I hope my post has given you followers/readers some knowledge of NMDA. Please help to spread further. You may never know who or which family you are helping.
Till here, stay tuned for more updates hopefully! For more detailed experiences of my story, CLICK HERE
Thanks so much for time.